How Should Epidemiologists Respond to Data Genocide?
AMA Journal of Ethics
Data quality for and about American Indian/Alaska Native (AI/AN) people is undermined by deeply entrenched, colonial practices that have become standard in US federal data systems. This article draws on cases of maternal mortality and COVID-19 to demonstrate the ethical and clinical need for inclusive, diverse, and accurate data when researching AI/AN health trends.
By Abigail Echo-Hawk, MA, Sofia Locklear, PhD, Sarah McNally, MPH, Lannesse Baker, MPH, and Sacena Gurule, MPA
January 2, 2025